Wow, yesterday was a great day. I have the second infusion and all went well. I felt clear headed, perky, pain free and got lots done. However when I woke up, my feet, ankles and lower legs were all swollen up. A steroid side effect. Ugh. Also I think I overdid it yesterday since I felt so much better. That is the kicker with MS. One feels good, overdoes, crashes. Sigh. I just want to get a grip.
Felt horrible most of the day, cold hot cold hot, tired, wired, tired, wired. All these are also steroid side effects. Luckily, I have not had to be restuck as my cannula is nicely embedded and holding up well. One more day, then its out.
After that I do a step down pack to wean off the steroids. Cannot just stop cold turkey. So I get another week of 'roid rage. I sure hope this helps, because its hell going through it.
I do love the new girls at the infusion center next to the Neurologists office. They are friendly, helpful and caring just like the whole staff at the Neuros. God bless them all. I was in and out of there in about 15 minutes with my little ball of Sol. :)
Now if the weather would break and give us clear skys and cold temps! We had about 5 inches of rain overnight last night and the sun didn't rise at daybreak as it was pouring. I did sleep better and woke up only once at 2 AM then slept until 8ish. I should have felt better but for the swollen ankles.